Monday, May 24, 2010

2 weeks Until Liberation

CCSVI and my Journey to Liberation

Okay so it's just a little over two weeks before I go to get liberated. Booking the hotel still didn't make it real enough. I still don't know if my insurance is going to cover this, but that is something I should know this week. I applied for a Med Pay credit card today also.

My story goes a little like this...

At age 20 (2003) I was bather for Petsmart and hoping to become a dog groomer. I was sick with the flu and called into work. My boss called me and begged me to come in and help. I did although I was running a fever. She split her tip with me from the lady who's dogs she needed help with. Always at least a $20 tip. So I came in to help. I was there and helped her with another dog's toenail trim when I was hit in the right temple. I was thrown back a little and blew it off. I went home ordered Papa John's and the Superbowl was on. I was still running a fever and "chilling" after work so I laied down and sweet out the fever. I noticed two days later I started loosing eyesight and depth perception. I was always really good at trimming nails and I couldn't seem to see them right. I would cover my left eye and see how much worse it was getting. I told Petsmart and they sent me to the doctor. After a month of back and forth and testing I was sent to a doctor and told I may have MS since after being treated with steroids. I responded and got my eyesight back after being blind in that eye. I noticed symptoms for the next few years, but when mentioning them to doctors I always got the "you are fine".

I went on to learn to groom although we will say Petsmart no longer wanted me as an employee and sure as hell didn't want to send me to grooming school if I was sick! They "let" me go because I was too depressed and I left a bag of chips sitting next to the computer one night when I closed. I let it go.

I got pregnant in 2004 and everything was wonderful and I had no new symptoms.

I got pregnant again in 2006 and this time my eye was hurting and my headache wouldn't go away. Right then I contacted my doctor and asked to see a neurologist. Sure enough I was right MS had finally made it's way back into my life. I went on to experience symptoms on my ride side and I couldn't sleep. I would beg the doctors to treat me and they wouldn't even consider it since I was at that time 7 months along. Finally I went to my OBGYN appointment dragging my right side. I was hospitalized given an MRI and diagnosed July 2, 2007. Since then I have had 5 flare ups. I have never been the same since this time in my life.

I hope to get those feelings back once again in 2 weeks. I don't want to expect too much in case I am let down. It's been a rough few years since my youngest was born. I no longer have energy and I am so forgetful. I think that the hardest thing is that we take walks and I can see how slow I am compared to my husband and the kids. My oldest rides so fast that I can't keep up at all. My little one was pulling my hand wanting me to run with him last night. I was speed walking and afterwards I was hurting!

Symptoms of right now;

left eye pain
loss of vision right eye
tightness in leg muscles
can't wiggle right toes
problems walking given Ampyra by neuro and I am not going to take it
left knee problems
stiffness
swollen feet
L'Hermitte's (which got better with LDN)
bladder porblems (overactive)
fatigue some days (to the point I can't function)
neck problems/pain (one flare up I couldn't turn my neck)
almost daily headaches
right elbow pain
right wrist problems after using the computer for long times
hand gets sore when grooming dogs (which one dog= 3hours)
electric shocks
muscle twinges
tight jaw
problems sleeping
anxiety

Some come and go most stay with me.

I am going to be liberated in two weeks and I am hoping I can cross a few of these off my list. I am not normally a religous person you can ask anyone. I prayed to God for help and to give me the chance to have this so I could in turn help others. I feel as if he has given me a gift and I shall treasure it and do good with it. I can't wait to slow down my progression! I have been declining a bit and it would be nice to feel like a 27 year old mom who can play sports with her kids and not be stiff.

I will start uploading videos and do a before and after.

Prayers to all

2 comments:

  1. Well done, my dear. Well done! Keep up the good work. And the fight!

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